Some people nearing the end of their life want to be at home. They just want the simple things, like the view from their bedroom window, and having their things around them, and familiar daily sounds can feel very comforting. They might want to see their family, pets and friends around them. Or they may want some privacy and peace.
Whatever it is that they need, caring for someone at home takes a coordinated effort, and planning.
Becoming a carer
Becoming a carer can happen gradually or very suddenly, it can last for years, weeks or even just days. However it happens, becoming a carer can come with a whole host of challenges as you enter a world you’ve never experienced before.
Your loved one might need specialist nursing as well as help with washing, eating and using the toilet. They may want a professional to help with these tasks, or a family member.
Your GP will know exactly what is practically required when caring for a terminally ill person at home, what pain management and equipment they may need.
Caring for someone with a terminal illness can be physically and emotionally draining. It can also be very rewarding and bring comfort being there with that person in their final days, months or even years.
Sometimes your loved one might need you during the night which will interrupt your sleep, making you unable to attend to other responsibilities such as taking the kids to school. That’s when coordinated care from family and friends is important, so others can support you and step in when you can’t.
Coping with the emotional rollercoaster
When you’re looking after someone who’s terminally ill, your responsibilities can take up a lot of time. Sometimes carers worry that if they take a break their loved one will become distressed, or might not get the care they need.
You may experience changing and intense emotions, including resentment, guilt, stress and depression.
And if you’re spending a lot of time looking after your loved one, it can be difficult to find the time to see your friends and socialise. And some friends might contact you less often because they think you’re busy or don’t want to talk to anyone. This can lead to feelings of isolation.
Keeping in touch with friends and family, and receiving support via a message or post to your support platform can make all the difference. Outside support is so important, and a tool which can help you coordinate care and keep in touch with friends and family is so important.
Coordinated care can help reduce the feeling carers often get of their world shrinking to their home and the hospital or GP surgery.